Please take the time to read before looking at the ALD Families included on this page.
Adrenoleukodystrophy appears still to this day, to be a disorder that is misdiagnosed and not understood or known by many in the health community. The developer of this site, mind you is not a medical professional just a parent advocate for ALD. The first sentence of this paragraph is based upon observation and experiences while learning about and dealing directly with Adrenoleukodystrophy.
There are those in the health community that do know of the disorder very well and they are in constant search for a cure and better ways to combat the disorder.
For those unaware, it is the intention of this site to provide them with the tools through the links provided on the home page to access information and contacts regarding ALD.
The families listed upon this page are to provide all who view it some insight beyond simply giving numbers and statistics. For those that view this page that are not part of the ALD family, it is not the intention of this sites creator providing this page for viewers to to be sympathetic or feel sorry for the families listed on this page.
The goal is to promote Awareness for Adrenoleukodystrophy, so that new families that join the ALD family will know they are not alone on their journey. Another goal is promoting the ever so important awareness within the medical community, perhaps those not aware will heed the call to learn more and communicate between each other regarding this disorder and other rare disorders.